Once Upon a Gene – Effie Park’s world was turned upside down when her baby boy was born with a genetic disorder so rare, that his disability doesn’t have a name! In Effie’s quest to find clarity and support, she was able to find a way to work through her initial fear and sadness. Today she shares her story of how this experience, has also worked to bring her and her family closer and has taught her the importance of community and self care. Listen till the end for a “special gift” from baby Ford.